Epidermolysis Bullosa (EB): You Can Help!
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YouTubedebra of America
Epidermolysis Bullosa (EB): You Can Help!
This video was made in collaboration with Children's Hospital Colorado to be used to help raise awareness of EB. Feel free to show it at your fundraiser, event, or anywhere you are trying to raise awareness! “Because the cost of doing nothing is too great” is an axiom that defines debra of America's mission and directs all of our actions as ...
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Epidermolysis bullosa . Epidermolysis bullosa (EB) is a very rare genetic skin condition and in worst cases can be fatal . Its diagnosed from birth by the neonatal team . This condition has 3 types and can vary from mild to severe. At present there is no cure of the condition and treatment is targeted to prevent complications . . In Pakistan there is lack of support for the children (and their parents ) with the condition .These children and their families need ongoing support with regards to tr
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